Elsevier
March 2026
Elizabeth Staton, MS, Senior Instructor for the University of Colorado Anschutz Department of Family Medicine, is a co-author of the recent Elsevier article "Community Perspectives on the Return of Research Results and Ownership of Data and Specimens for Brain Tumor Genomic Research."
This study examines how community members believe ethical principles should be put into practice within genomic research involving people with low‑grade glioma (LGG) brain tumors, a condition in which genomic data plays a critical role in diagnosing, prognosis, and guiding treatment. Improving trust, transparency, and communication in LGG‑related genomic studies.
From the article:
“Trust is one of the most important factors in an individual's decision to participate in research – especially for research involving donation of biospecimens and in communities underrepresented in research. Trust in research is based in part on a participant's perception of how well researchers uphold ethical values, such as perceived support for autonomy, privacy, ownership, and relevance. In the context of genomic research, community engagement aids in addressing potential ethical concerns in the planning, conduct, and dissemination of the research. The purpose of this paper is to describe community perspectives (e.g., patients, advocates, clinicians, researchers) on how researchers may demonstrate adherence to these ethical values in the context of genomic research in a community for which tumor genomic characterization is central to diagnosis, prognosis, and treatment decision making: low grade glioma (LGG) brain tumors. We engaged LGG community members in understanding how research ethics principles may be best operationalized in recruitment and communication with potential LGG research participants.”
Read more of this study in Elsevier.