When Kyla Bingham's daughter Elly was two months old, her left eye was surgically removed. Today, Bingham anxiously hopes to avoid the day Elly, now 2, may lose the other. Elly has been diagnosed with familial exudative vitreo-retinopathy, or FEVR for short. An extremely rare, unpredictable genetic disease, FEVR is characterized by a malformation of the blood vessels in the retina, the tissue that lines the inside of the eye.