The National Cancer Institute (NCI) is hosting a symposium to explore the impact of personal control of genomic data sharing to research, clinical care, and patient well-being and engagement. |
NCI welcomes advocates, researchers, policy leaders, and the public to this symposium, held under the auspices of the Cancer Moonshot. |
The symposium will host sessions on the following topics: • Motivations for and perceptions of participants controlling their own data; • Facilitating personal control of data sharing – existing approaches and platforms; • Risks and benefits to participants and their communities; and • The role of individuals who wish to share their data in clinical practice and healthcare. |
Registration is available for in-person or online attendance. To register, visit https://events.cancer.gov/participantsharedata. |
Please note that registration is complimentary. There will also be an opportunity to submit abstracts for poster presentation during the symposium |
Symposium Details |
The symposium will take place from 8:00 AM to 5:00 PM ET on September 26, 2019 and from 9:00 AM to 12:00 PM ET on September 27, 2019. This event will take place in Masur Auditorium in the Clinical Center on the main NIH campus in Bethesda, Maryland. |
The agenda is still in development, but additional information will be available in the near future on: https://events.cancer.gov/participantsharedata. |
CU Anschutz
Anschutz Cancer Pavilion
1665 North Aurora Court
2004
Aurora, CO 80045