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Children's Hospital Colorado opens first multidisciplinary clinic in U.S. for rare neurological disorder

The clinic specializes in the evaluation, diagnosis and care of patients living with Koolen-de Vries syndrome from infancy into young adulthood

by PR Newswire | April 21, 2026
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"The launch of the Kool Clinic underscores Children's Colorado's ongoing dedication to advancing care for children with rare and complex conditions," said Megan Abbott, MD, neurologist, epileptologist and medical director of the Kool Clinic. "Our first-in-the-nation multidisciplinary model allows us to come together around each patient, deliver thoughtful, coordinated evaluations and support families with clearer direction, shared expertise and hope for the path ahead."